Cure the NHS - Mid Staffs hospital inquiry http://www.curethenhs.co.uk Campaigning for better NHS care Thu, 09 Jan 2014 08:46:39 +0000 en-US hourly 1 http://wordpress.org/?v=3.4.2 Julie Bailey Cure The NHS Campaigner awarded CBE in New Years Honours http://www.curethenhs.co.uk/blog/julie-bailey-cure-the-nhs-campaigner-awarded-cbe-in-new-years-honours/ http://www.curethenhs.co.uk/blog/julie-bailey-cure-the-nhs-campaigner-awarded-cbe-in-new-years-honours/#comments Tue, 31 Dec 2013 09:06:01 +0000 Deb http://www.curethenhs.co.uk/?p=1525  

NHS campaigner Julie Bailey awarded CBE in New Year Honours

NHS campaigner Julie Bailey has dedicated her CBE to her late mother – whose death promoted a campaign to expose the neglect of patients at Stafford Hospital.

Ms Bailey founded the campaign group Cure The NHS after being appalled by the care she witnessed her mother receive at the hospital.

 

Julie Bailey, founder of Cure the NHS Credit: Dominic Lipinski/PA Wire

 

Ms Bailey has been awarded a CBE for her services to the care of older people in the New ...]]>  

NHS campaigner Julie Bailey awarded CBE in New Year Honours

NHS campaigner Julie Bailey has dedicated her CBE to her late mother – whose death promoted a campaign to expose the neglect of patients at Stafford Hospital.

Ms Bailey founded the campaign group Cure The NHS after being appalled by the care she witnessed her mother receive at the hospital.

 


Julie Bailey, founder of Cure the NHS Credit: Dominic Lipinski/PA Wire

 

Ms Bailey has been awarded a CBE for her services to the care of older people in the New Year Honours List.

She said: “I am deeply honoured to receive this award as an important acknowledgement of our struggle for a better NHS. I am certain that my mum would be extremely proud of me and it is to her I dedicate not only this award but also our continuing struggle for a safer health service.”

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Julie Bailey: A carer’s perspective on leadership in the NHS http://www.curethenhs.co.uk/blog/julie-bailey-a-carers-perspective-on-leadership-in-the-nhs/ http://www.curethenhs.co.uk/blog/julie-bailey-a-carers-perspective-on-leadership-in-the-nhs/#comments Tue, 03 Dec 2013 11:00:01 +0000 Deb http://www.curethenhs.co.uk/?p=1519

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Mid Staffs inquiry calls for ‘fundamental change’ in NHS Robert Francis http://www.curethenhs.co.uk/blog/rcp-comment-on-the-governments-response-to-the-francis-report/ http://www.curethenhs.co.uk/blog/rcp-comment-on-the-governments-response-to-the-francis-report/#comments Tue, 03 Dec 2013 10:45:42 +0000 Deb http://www.curethenhs.co.uk/?p=1505

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New Care Quality Commission Chair Praises Cure the NHS http://www.curethenhs.co.uk/news/new-care-quality-commission-chair-praises-cure-the-nhs/ http://www.curethenhs.co.uk/news/new-care-quality-commission-chair-praises-cure-the-nhs/#comments Tue, 18 Jun 2013 16:59:44 +0000 Media http://www.curethenhs.co.uk/?p=1457 After his first meeting with Julie Bailey and other Cure the NHS members in Stafford recently, David Prior, the new Chair of the Care Quality Commission (CQC), who was appointed in January, spoke candidly of his appreciation of the whistle blowing group’s work.

Mr Prior said, “One of the lessons that I have learned from the tragedy that occurred at Mid Staffs Hospital is humility. It took the dogged determination, perseverance and courage of Julie Bailey and a small number of others to bring to light ...]]> After his first meeting with Julie Bailey and other Cure the NHS members in Stafford recently, David Prior, the new Chair of the Care Quality Commission (CQC), who was appointed in January, spoke candidly of his appreciation of the whistle blowing group’s work.

Mr Prior said, “One of the lessons that I have learned from the tragedy that occurred at Mid Staffs Hospital is humility. It took the dogged determination, perseverance and courage of Julie Bailey and a small number of others to bring to light a catastrophic failure at the heart of one of our most cherished institutions, the NHS.”

While support for Julie Bailey’s campaign for better care is continuing to grow across the country, she and other Cure the NHS supporters have been the subject of a hate campaign within their home town of Stafford and this was discussed during the meeting.

David Prior spoke unambiguously about the positive role Cure the NHS has had on the nation’s most cherished institution, saying, “They succeeded where everyone else failed. I think we will look back on their campaign in a few years time and be able to say that they have fundamentally changed the NHS. They will have ensured that patient safety, compassion and care quality are entrenched at the heart of the NHS. It will be for others to do this, including the Secretary of State and the Care Quality Commission, but we will never forget that it was a few normal, decent people in a café in Stafford that made the vital difference.”

The founder of Cure the NHS, Julie Bailey told us, “Our aim is to highlight the areas within the Health Service where better care is needed and this is a goal we share with the CQC. We are very pleased to have had such an open and constructive meeting with Mr Prior. We look forward to working with Mr Prior and the CQC wherever possible and we welcome the opportunity we have already been given to comment on a draft document regarding patients’ feedback about the care they have received.”

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King’s Fund’s NHS Leadership Summit 2013 http://www.curethenhs.co.uk/blog/kings-funds-nhs-leadership-summit-2013/ http://www.curethenhs.co.uk/blog/kings-funds-nhs-leadership-summit-2013/#comments Tue, 18 Jun 2013 16:57:37 +0000 Media http://www.curethenhs.co.uk/?p=1449 On May 23rd, Julie Bailey, Founder, Cure the NHS, gave a poignant speech at The King’s Fund’s NHS Leadership Summit 2013 in London.

See more here:

http://www.kingsfund.org.uk/audio-video/julie-bailey-carers-perspective-leadership-nhs

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On May 23rd, Julie Bailey, Founder, Cure the NHS, gave a poignant speech at The King’s Fund’s NHS Leadership Summit 2013 in London.

See more here:

http://www.kingsfund.org.uk/audio-video/julie-bailey-carers-perspective-leadership-nhs

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Inundated with complaints from all over the UK http://www.curethenhs.co.uk/news/inundated-with-complaints-from-all-over-the-uk/ http://www.curethenhs.co.uk/news/inundated-with-complaints-from-all-over-the-uk/#comments Sun, 17 Feb 2013 21:15:19 +0000 Julie Bailey http://www.curethenhs.co.uk/?p=1409 Since the report was published we have been inundated with complaints from all over the UK. I will get back to you but please be patient.

In the meantime I am suggesting that everyone with a complaint against their hospital sets up a facebook site to allow others to make contact. What I am finding is that there are several from each hospital and it is a way of grouping complainents together. The more voices speaking out together the more chance you have of gettting any ...]]> Since the report was published we have been inundated with complaints from all over the UK. I will get back to you but please be patient.

In the meantime I am suggesting that everyone with a complaint against their hospital sets up a facebook site to allow others to make contact. What I am finding is that there are several from each hospital and it is a way of grouping complainents together. The more voices speaking out together the more chance you have of gettting any improvements.

 

If you feel you are able to set help I am suggesting that you call it Cure the NHS (and then the name of your hospital)

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Hate Campaign- name and shame http://www.curethenhs.co.uk/blog/hate-campaign-name-and-shame/ http://www.curethenhs.co.uk/blog/hate-campaign-name-and-shame/#comments Thu, 06 Dec 2012 23:32:18 +0000 Julie Bailey http://www.curethenhs.co.uk/?p=1299 A friend called me today telling me that someone named Stephen Gullick had added a review on Amazon about my book- a very hurtful review but I thought it is the readers right to review a book they have purchased. But then I realised that the name was familiar with me and when I looked through my emails I realised that this man is probably the same man who sent me a series of emails which I have attached below. I also remember contacting the ...]]> A friend called me today telling me that someone named Stephen Gullick had added a review on Amazon about my book- a very hurtful review but I thought it is the readers right to review a book they have purchased. But then I realised that the name was familiar with me and when I looked through my emails I realised that this man is probably the same man who sent me a series of emails which I have attached below. I also remember contacting the police about this man because of comments he was putting on a facebook site. There was nothing they could do to help me and he obviously continues his campaign against me

This is something we have had to put up with for four years now and I have reached a point where I have had enough of it. Its time to start exposing these people

Received 05/11/11

Well, it looks very much like Stafford is to lose the A&E department at Stafford Hospital.
So, a big thank-you to Julie Bailey and her ‘Cure the NHS’ and to Staffordshire Newsletter, both of whom launched a determined and, obviously, successful campaign to get ‘something done’ about Stafford Hospital. Well done, something has now ‘been done’ – and believe me, it’s just the start.

I hope the campaigners for this action do not have the occasion to seek emergency help as the extended trip to Stoke or Wolverhampton for A&E could well cost them their life.

Well done Julie Bailey – I hope you are proud of yourself.

From: Steve Gullick

06/11/11

 

I can only conclude that you are very pleased with your cure for Stafford DGH. Well done! You have now ensured many more Staffordians WILL die thanks to your misplaced anger and grief! Very sorry for your loss but inflicting that same pain on others by proxy is not the way to go about it.
Once again congratulations on a campaign well fought I will ensure that the name Julie Bailey is on the lips of every man, woman and child that has to endure the suffering of losing a loved one due to the closure of Staffords A&E dept. £3million spent on a meaningless “enquiry” could well have been spent on medicine and doctors for our A&E dept. You and your poorly thought through campaign have ensured that money has been directed away from vital facilities at our hospital. A hospital that has saved lives of my family. Please abandon your campaign before any more damage is done. Many more lives will be lost in vain if this ridiculous campaign continues. Rest assured I will be in constant contact regarding this very dire issue.

Yours in hope,

Andrew Gullick

07/11/11

I am dismayed that I have not received an acknowledgment for my message yesterday.

However, a question for your campaign. If the shocking and terrifying M5 disaster had occurred on the M6 between J13 and J14. At a similar time to the M5 crash (approximately 8.30pm) and Stafford DGH has had it A&E dept closed or working at limited capacity. How many lives do you think would be lost needlessly?

I realise the reason behind the proposed closure is down to cost. The unrelenting attack on our Hospital has now cost around £3,000,000. I believe this money would have been better spent on Doctors and Nurses. What does your campaign think?

I realise that there were problems at Stafford DGH and there should be answers given. Has this now gone on long enough? The hospital is changing you have won!

Perhaps you are not yet sated. I suggest the oncology dept should be the next target, or perhaps the childrens ward.

People will always die in a hospital, sometimes these deaths are avoidable. Doctors and nurses are human beings and will make errors from time to time. Especially when being driven by targets enforced by unthinking managers. I am curious to know whether you believe that the Doctors and Nurses at SDGH entered into their profession to help people or whether it was for the money? I doubt Nurses do it for the cash really I do.

The image of our Hospital has been forever tarnished now. What is it you require for victory in this campaign. So far it seems that you are intent on destroying the NHS. I hope this is wrong but I fear the worst.

I look forward to hearing from you.

Andrew Gullick

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AVMA award for Patient Safety and Justice http://www.curethenhs.co.uk/blog/avma-award-for-patient-safety-and-justice/ http://www.curethenhs.co.uk/blog/avma-award-for-patient-safety-and-justice/#comments Mon, 26 Nov 2012 00:50:03 +0000 Julie Bailey http://www.curethenhs.co.uk/?p=1281 Although it was an honour to recieve the award I also reminded the audience that patient safety statistics tell us that incidents have increased and not reduced as we would have hoped.

It was lovely to meet other campaigners at the event that I hadnt met before. I met with Will Powell who has battled for justice over the death of his dear son Robbie for many years. A brave man and all he wanted when he lost his son was the truth. Not much to ...]]> Although it was an honour to recieve the award I also reminded the audience that patient safety statistics tell us that incidents have increased and not reduced as we would have hoped.

It was lovely to meet other campaigners at the event that I hadnt met before. I met with Will Powell who has battled for justice over the death of his dear son Robbie for many years. A brave man and all he wanted when he lost his son was the truth. Not much to ask is it when you loose your child through an error. Instead he was faced with denial and a cover up. To this day his battle continues, his strength inspires me to battle on myself.

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From Ward to Whitehall – Review http://www.curethenhs.co.uk/blog/from-ward-to-whitehall-review/ http://www.curethenhs.co.uk/blog/from-ward-to-whitehall-review/#comments Thu, 15 Nov 2012 22:42:58 +0000 Julie Bailey http://www.curethenhs.co.uk/?p=1215 “From Ward to Whitehall”

 

Julie Bailey’s book ‘From Ward toWhitehall’ is going to cause a sensation.  In a week when the use by hospitals of theLiverpoolCare Pathway (the so-called ‘end of life treatment’) is being passionately aired in newspapers and radio, the publication of this book could not be more apt.  Many who read Julie’s account of the death of her mother, Bella, in an NHS hospital are sure to say, with a mixture of sadness and regret but also with relief that ...]]> “From Ward to Whitehall”

 

Julie Bailey’s book ‘From Ward toWhitehall’ is going to cause a sensation.  In a week when the use by hospitals of theLiverpoolCare Pathway (the so-called ‘end of life treatment’) is being passionately aired in newspapers and radio, the publication of this book could not be more apt.  Many who read Julie’s account of the death of her mother, Bella, in an NHS hospital are sure to say, with a mixture of sadness and regret but also with relief that someone is telling this story, “That is my experience, too.”  It is also the story of Julie’s campaign to reveal what was happening inStaffordHospitaland her fight for a public inquiry.

 

I read this book with a special personal interest.  I have a mother who worked for many years in just about everyLondonhospital as a medical secretary to senior consultants.  I have a sister who is an ophthalmologist who, with a team of volunteer surgeons, has conducted, for free, tens of thousands of sight restoring operations for the poorest people in ruralIndiathrough her charity, Second Sight.  I have a husband who became part of the campaign group Cure the NHS which Julie Bailey founded.  I worked for years as a freelance trainer in nine different government departments, including the Department of Health where its formerPermanent Secretary, Sir Hugh Taylor, led one of my programmes.  So I devoured this book, reading it in a day and bringing to it a whole collection of my own preconceptions about the NHS and the Department of Health, including that, at some levels, the world of Health is full of truly impressive intellectual prowess but short of practical, emotional good sense and where many a mortal seems in awe of the NHS CEO, Sir David Nicholson, the same man who, as Professor Sir Brian Jarman points out in the Foreword to this book, chose to dismiss as “simply lobbying” the experiences and issues first raised by Cure the NHS.

 

It was not until I sat in on my husband’s evidence to the Robert Francis Public Inquiry into Mid Staffs that I began (only began) to appreciate what Julie and her fellowbereaved campaigners had to go through both personally and as a team.  Then I picked up this book and I found myself, in one read, feeling the kind of changing attitudes towards the NHS that these campaigners must have experienced – a deep faith in its care and professionalism tinged first by disbelief and disappointment followed by absolute horror that my pride should be shattered in the wonderful, civilised NHS system of free healthcare for all that we are lucky to have in the UK.

 

‘From Ward toWhitehall’ is a painful and tragic read, describing what must surely be the most shameful episode in NHS history,  but it is also uplifting and hopeful and enlightening and that’s what makes it a sensation.

 

My emotional journey as a reader was to try and explain away, as evidence of ward staff under inordinate pressure, the ignored call bells, the leaking catheters, the porter so rushed that he crashes his patient’s trolley into some oxygen bottles, the arrival in the wrong ward, even (Heaven help me!) the patients left distressed and smelly in faeces-soiled clothes, slippers and bed linen and given the wrong medication.  The NHS means so much to me that I was ready to find the excuses.  But what I found myself unable to excuse at any level was the behaviour. Individual behaviour, after all, is our own personal choice.  The images described by Julie Bailey are almost too much to bear – the “get back ter yer fuckin bed” behaviour, the doctor clicking two fingers in Julie’s face to illustrate how her mother “will die just like that,” the irresponsibility of the nurses eBay sessions while on duty, patients left on the floor where they have fallen desperately trying to get to the loo to avoid messing their beds, the old woman, bed ridden for three weeks, being frogmarched to the toilet and back and being left to cry, shaken and cowed, under her covers, the image of dehydrated mouths, bleeding and covered in a white film.

 

What is the use of all that intellectual excellence in the civil service if it does not result in a true sense of emotional responsibility to people it is supposed to serve?

 

Written in a conversational style and with the kind of detail of one woman’s personal journey that will resonate with the experience of others, this book is an emotional journey and it also serves to highlight how, even for a woman of grit like Julie Bailey, it is terribly hard to stand up for your rights in a bullying institutional culture, where people don’t even need to be told to conceal, deceive and deny because the institutional inclination is so strong.  And yet, despite this, the reader can admire those who went out of their way to help and to do the right thing, like the junior doctor who warned Julie “You need to get your mum out of hospital before she comes to any harm.”  The reader can feel the optimism Julie and her family felt as the day of discharge approached, and then the despair and horror when her mother was dropped and left without being seen all night while the ward manager insistently stands over the terrifiedBella stating “you slipped didn’t you!”

 

I find myself thinking “Is this what the 21st Century hospital experience really is?”  And then, I question the extra £46 million (Health Service Journal article, Shaun Lintern October 2012) the NHS has just commissioned to be spent on a new “LeadershipAcademy” and I wonder about the appropriateness of this use of tax payers’ money. Is it desperation stakes?  Is it a cynical gesture? Is it self-serving plunder?  Worst of all, given my attachment to the concept of the NHS, I find myself thinking unthinkable thoughts and wondering whether, with all that intellectual brilliance I experienced in the Department of Health (the strategy arm, after all, of the NHS),  this downward spiral of care quality in the NHS is not deliberately designed to make us so fed up with what the NHS offers that we will all willingly accept its transfer to the private sector on the grounds that “anything is better than this, even a privately run NHS.”  And then I go on to wonder which big shots will most benefit from that.

 

I said this book is also hopeful and that is the feeling, above all, that I take away from it.  Why?  Because this is also the story of an exceptional, natural campaign leader and an exceptional team who found different roles to suit the different levels of skill and confidence in the Cure the NHS group.  They expertly organised their personal grit, resilience and determination to deal with the infuriatingly sluggish, self-satisfied, devious, dismissive bureaucratic responses they encountered when they first raised their issues.  They found common sense strategies to break through the one thing the Establishment knows how to do very well indeed – close ranks.

 

It’s a story of undying hope and of determined, organised, sustained application.  It’s a story of a team working at the highest level of performance, not as the result of training but because each and every one of themnever,never took their eye off the prize of truth and justice at the end of the road and, when the going was tough, even abusive and almost unbearable, they always found ways to support those whose suffering became too much.

 

For other campaigning groups, here is a potential model.

 

Yes, it’s a story of hope.

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Little has changed- Today programme interview this am http://www.curethenhs.co.uk/news/little-has-changed-today-programme-interview-this-am/ http://www.curethenhs.co.uk/news/little-has-changed-today-programme-interview-this-am/#comments Thu, 15 Nov 2012 22:17:31 +0000 Julie Bailey http://www.curethenhs.co.uk/?p=1203 This morning the Today programme will broadcast an interview I gave a few weeks ago, following a series of appalling complaints that came to see me regarding the care their loved one received at Mid Staffs.

It seems that any improvements that we hear about on the wards, the next few weeks we hear that any improvements havent been sustained.

The last round of complaints involved an elderly woman left on the commode for three hours. /when the family complained they were told that the staff cannot remember it happening. And ...]]> This morning the Today programme will broadcast an interview I gave a few weeks ago, following a series of appalling complaints that came to see me regarding the care their loved one received at Mid Staffs.

It seems that any improvements that we hear about on the wards, the next few weeks we hear that any improvements havent been sustained.

The last round of complaints involved an elderly woman left on the commode for three hours. /when the family complained they were told that the staff cannot remember it happening. And no further action was taken- lessons learnt?

Another family told me that there was no water available on the ward for any of the patients- lessons learnt

We heard the same thing from another ward and another complainant, no water available through the night.

http://www.bbc.co.uk/iplayer/b006qj9z/console

 

 

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